European Epilepsy Day – 13th February 2012
The passing of a Written Declaration on Epilepsy, September 2011, highlighted the need for increased research funding for epilepsy. Now we are hoping for specific calls for epilepsy research from the FP7 budget, support for conferences, and funding from DG Sanco for 2013.
However, with the burden cost of epilepsy in Europe standing at €20 billion annually, we cannot be complacent. We must ensure that epilepsy remains at the top of the agenda.
The fact that 6 million people in Europe suffer from this disease; that 300,000 new cases are diagnosed each year; and that SUDEP (Sudden Unexpected Death in EPilepsy) is responsible for 33,000 deaths in Europe annually; should be testament to the EU of the need to improve health awareness and research funding for epilepsy.
With your help, we can reduce the stigma associated with epilepsy; we can improve the lives of 6 million people; and we can work towards a cure for this chronic disease. We therefore call on you, as Members of the European Parliament, together with the Council and the Commission, to increase funding for epilepsy research and awareness initiatives in 2012.
Please join us!
Epilepsy Without Words Photographic Exhibition
to celebrate European Epilepsy Day 2012
Date: 14 February 2012
Venue: Swan Bar Exhibition Area
European Epilepsy Day is organised by Epilepsy Advocacy Europe Task Force, European Advocates for Epilepsy MEP special interest group, and by national epilepsy associations across Europe.
Epilepsy Advocacy Europe (EAE): Epilepsy Advocacy Europe is a Joint Task Force of the International League Against Epilepsy (ILAE) and the International Bureau of Epilepsy (IBE) for the facilitation of initiatives to enhance public awareness and support to research in epilepsy in Europe. EAE seeks to make epilepsy a priority in political and research establishments across Europe.
International League Against Epilepsy (ILAE): ILAE is the leading association of physicians and other health professionals working towards a world where no persons’ life is limited by epilepsy. Its mission is to ensure that health professionals, patients and their care providers, governments, and the public have the educational and research resources that are essential in understanding, diagnosing and treating persons with epilepsy.
International Bureau for Epilepsy (IBE): IBE is an international umbrella organisation of national organisations representing people with epilepsy worldwide. IBE was founded in 1961 to improve the social condition and quality of life of people with epilepsy. By working to increase awareness, understanding and knowledge of epilepsy, IBE aims to meet the needs of people with epilepsy as well as those who care for them.
European Advocates for Epilepsy Working Group: is a group of cross-party, cross-national MEPs with particular interest in epilepsy. The group aims to improve the quality of life of all people with epilepsy, their families, care-givers and healthcare providers through European Union (EU) policy. This is achieved by providing a network for the exchange of experience, information and data on epilepsy between all interested stakeholders.